Wednesday, March 16, 2011



Please contact me if you are interested! Corporate sponsors over $100 will be recognized on the T-shirts given out at the event itself!

Conquer Chiari Walk Across America 2011
Corporate Sponsorship Opportunities
The Walk Across America


The Conquer Chiari Walk Across America is an annual fundraising and awareness event comprised of a series of local walks held on the same day. In 2010, the event was held at 28 different locations, involved more than 4,000 participants, and raised over $330,000. We are proud to say that 87% of the money raised will be used directly to fund research projects and that only 13% was required for overhead and expenses. This year the walk will be held on September 17th, and it is our goal to raise at least $375,000 for research.

About Chiari Malformation:

Chiari Malformation is a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms. It can strike children and adults and cause crippling headaches, neck pain, balance problems, trouble breathing, numbness and weakness in the limbs, and a host of other problems. To date there has been very little research on Chiari and fundamental questions regarding its underlying cause, diagnosis, and treatment re
estimated that Chiari affects 300,000 people in the US.

About Conquer Chiari:

Conquer Chiari, known formally as the C&S Patient Education Foundation, is a 501(c)3 public charity dedicated to improving the experiences and outcomes of Chiari patients through education, awareness, and research. The Conquer Chiari website (www.conquerchiari.org) is the single most comprehensive source of information available on Chiari and related topics.
We are looking for corporate partners to help us achieve our mission. Please take a moment to review the sponsorship opportunities described on the next page. If you would like to sponsor the Conquer Chiari Walk Across America, simply fill out and return the attached form or sign up on-line at www.conquerchiari.org.
For questions or more information, please contact:
Rick Labuda, Executive Director, director@conquerchiari.org, 724-940-0116.

THANK YOU!

CCWAA 2011 Corporate Sponsorship Opportunities

Sponsorship Levels
National ($10,000+) – Company Name/Logo prominently displayed on T-shirts and signage at every walk site; recognition on Conquer Chiari website home page; verbal acknowledgment at every walk event; listed in press guide at every site
Signature ($1,000+) – Company Name/Logo largely displayed on T-shirts at local walk site; verbal acknowledgment at local walk event
Local Plus ($250+) – Company Name/Logo displayed on T-shirts at local walk site
Local ($100+) – Company Name displayed on T-shirts at local walk site

The C&S Patient Education Foundation is a Pennsylvania nonprofit organization (501c3), which is dedicated to improving the experiences and outcomes of Chiari & syringomyelia patients through education, awareness, and research.
C&S Patient Education Foundation is located at 320 Osprey Court, Wexford, PA 15090, and may be reached at 724-940-0116.
You may obtain a copy of the charity’s financial report by writing to the charity’s name and address. The charity may be exempt from registration as a charitable organization in a number of states and jurisdictions. However, if this charity is required to register and comply with laws related to charitable contributions, residents of the following states may obtain information as follows:
Arizona: Financial information filed with the Secretary of State, State Capitol, 1700 West Washington, 7th Floor, Phoenix AZ 85007-2808, is available for public inspection or by calling toll-free, 1-800-458-5842.
California: The official registration and financial information regarding the charity can be obtained from the Attorney General’s Web site at http://caag.state.ca.us/charities/.
Colorado: Charity’s registration number: 20033005084; Colorado residents may obtain copies of registration and financial documents from the Secretary of State by calling (303) 894-2680 or at www.sos.state.co.us.
FLORIDA: FL Registration # . A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE, 1-800-435-7352 or 1-800-FLA-Yuda POR ASISTENCIA EN ESPANOL.
Georgia: A full and fair description of the programs of C&S Patient Education Foundation and our financial statement summary is available upon request at the office and phone number indicated above.
Illinois: Contracts and reports regarding the charity are on file with the Illinois Attorney General.
Kansas: C&S Patient Education Foundation’s Kansas registration number is The annual financial report for the preceding fiscal year is on file with the Secretary of State, 1st Floor, Memorial Hall, 120 SW 10th Ave., Topeka KS 66612.
Maryland: Copies of documents and information submitted by C&S Patient Education Foundation under the Maryland Charitable Solicitations Act are available for the cost of copies and postage from the Secretary of State, State House, Annapolis MD 21401, 1-410-974-5534,(1-800-825-4510 within Maryland).
Mississippi: The official Registration and financial information of (charity’s name) may be obtained from the Mississippi Secretary of State’s office by calling 1-888-236-6167.
New Jersey: INFORMATION FILED WITH THE ATTORNEY GENERAL CONCERNING THIS CHARITABLE SOLICITATION AND THE PERCENTAGE OF CONTRIBUTIONS RECEIVED BY THE CHARITY DURING THE LAST REPORTING PERIOD THAT WERE DEDICATED TO THE CHARITABLE PURPOSE MAY BE OBTAINED FROM THE ATTORNEY GENERAL OF THE STATE OF NEW JERSEY BY CALLING (201) 504-6215 AND ARE AVAILABLE AT www.state.nj.us/lps/ca/.
New York: New York residents may obtain a copy of (charity’s name) annual report by writing to the Office of the Attorney General, Department of Law, Charities Bureau, 120 Broadway, New York NY 10271.
Pennsylvania: The official registration and financial information of (charity’s name) may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1-800-732-0999.
Virginia: A financial statement for the most recent fiscal year is available upon request from the Division of Consumer Affairs, Department of Agriculture and Consumer Services, P.O. Box 526, Richmond VA 23218; 1-804-786-1343.
Washington: A Notice of solicitation required by law is on file with the Washington Secretary of State. You may obtain additional financial disclosure information by contacting the Secretary of State at 1-800-332-GIVE.
Vermont: How Contributions Are Allocated Between Charity and Fundraiser. For information on how much of your contribution goes to the charity and how much to the paid fundraiser, contact the Vermont Consumer Assistance Program, Morrill Hall, UVM, Burlington VT 05405, tel. 1-800-649-2424, or the Vermont Attorney General’s Internet website, http://www.atg.state.vt.us/
REGISTRATION WITH A STATE AGENCY DOES NOT CONSTITUTE OR IMPLY ENDORSEMENT, APPROVAL OR RECOMMENDATION BY THAT STATE.

Thursday, March 3, 2011

Conquer Chiari Walk Across America 2011



September 17th, 2011
Brownlow Trail/Pioneer Park
Prescott, AZ

Well, I said I would do it! Last September, I was pretty much bedridden when I heard about the Conquer Chiari Walk. It was so sad to find out that no one had organized a walk in Arizona in 2010. So, I decided last year, that I would organize a walk this year....even if it were from my electric wheelchair and/or walker. BUT GUESS WHAT? I no longer need them since I had neurosurgery on 11-16-2010 (tethered cord release)! I am still very ill and have good days and bad. But...I can do a lot of organizing from my bed. I also found out that there will be TWO walks in Arizona this year! Talk about awareness! Yay!!!!

For those of you that want to help, below you will find a list of things that I will need in the future. The websites are still being set up so, as soon as they are ready, I will let you know.

*Sponsers (Donations are usually tax deductable and donations over $100 will be recognized on the event t-shirts and at the event itself)
*teams for the walk
*team leaders
*item donations (ie: snacks for walkers, door prizes, water, etc)
*volunteers to work water stations
*volunteers for sign ups the day of the events
*volunteers with special talents (ie: face painting, baloon animals, dj, chair massage, etc)
*monetary donations
*does anyone know someone with a jumping castle?
*I will need a lot printing and signs so if you know anyone, please let me know.

https://www.conquerchiari.org/index.htm